Privacy Policy

We collect information in three ways: information you provide to us directly, information collected automatically when you use our website, and information we receive from third-party platforms.

Information you provide directly. When you complete a form on our website, join our contact list, or respond to a prescreening questionnaire, we may collect your name, date of birth or age, ZIP code, email address, phone number, mailing address, and information about your medical conditions, symptoms, and medications that you choose to share so we can assess your potential eligibility for a study.

Information collected automatically. When you visit our website, we and our service providers may automatically collect technical and usage information such as your IP address, device and browser type, operating system, approximate geographic location, the pages you view, the time spent on those pages, and the site or ad that referred you. This is collected through cookies and similar technologies described in the “Cookies and Tracking Technologies” section below.

Information from third-party platforms. When you respond to one of our advertisements on a third-party platform — for example, a Meta (Facebook/Instagram) Lead Ad — that platform may pass us the contact and prescreening information you submitted through its form.

We use the information we collect to:

• evaluate your potential eligibility for clinical trials and match you to studies that fit your health profile and interests;
• contact you — by phone, email, and/or text message (SMS) — about the study you inquired about, to schedule and remind you of prescreening visits and appointments, and to follow up;
• notify you about future clinical trial opportunities, unless you opt out;
• arrange study-related services such as transportation to visits and the processing of any participation stipends or reimbursements;
• operate, analyze, secure, and improve our website and measure the effectiveness of our recruitment advertising; and
• comply with our legal, regulatory, and contractual obligations.

By submitting your information through our website forms, you consent to being contacted by phone, email, and text message about the study you inquired about and, unless you opt out, about future opportunities that may match your health profile.

ALSA Research, LLC is the owner of the information collected through this site. We do not sell your personal information, and we do not share it with unauthorized third parties. We share information only with the following categories of recipients, and only as needed to provide our services or meet our legal obligations:

• Clinical trial sponsors and contract research organizations (CROs) — when you are matched to or enroll in a study they manage;
• Our clinical trial management system (CRIO) — the platform we use to maintain participant records, manage enrollment, and send study-related text messages;
• Our recruitment and patient-engagement platform (Delfa) — which we use to manage outreach to and communication with potential participants, including text messages;
• Our cloud hosting and infrastructure provider (Google Cloud Platform) — where our website data is stored and processed;
• Analytics and advertising providers (Google Analytics and Meta) — only as described in the “Advertising and Analytics” section and only after you opt in to marketing cookies;
• Our stipend / payment processor — to issue any participation stipends or reimbursements;
• Transportation partners (such as Uber Health) — to arrange rides to and from study visits when offered; and
• Legal, regulatory, and government authorities — when required by law, regulation, subpoena, or other valid legal process, or to protect the rights, safety, and property of ALSA, our participants, or others.

We require our service providers to protect your information and to use it only for the purposes for which we share it.

The prescreening and contact information you submit through our website or through a third-party ad form is generally collected before you enroll in a study and is not, at the time of collection, “protected health information” governed by the Health Insurance Portability and Accountability Act (HIPAA). We nonetheless treat this information as sensitive and apply reasonable safeguards to it.

If you enroll in a clinical trial at ALSA, the health information created or collected as part of that study is governed by HIPAA and other applicable laws. At that time, you will receive and sign a separate HIPAA Authorization and an Informed Consent Form that explain in detail how your protected health information will be used and disclosed for the study.

By providing your mobile phone number, you expressly consent to receive recurring text messages (SMS) from ALSA Research, LLC about clinical trial opportunities, including eligibility notifications, appointment scheduling and reminders, and study follow-ups. Consent to receive text messages is not a condition of participating in any clinical trial.

Message frequency varies. Message and data rates may apply. You can opt out at any time by replying STOP to any message; you will receive one confirmation message and then no further texts. For help, reply HELP or contact us using the information at the end of this policy.

We do not share your mobile number or text-message opt-in data with third parties for their own marketing. Our text messages are sent through our recruitment and trial-management platforms (Delfa and CRIO) and may come from the following numbers:

• +1 (475) 267-5317
• +1 (203) 274-9444
• +1 (475) 231-4779
• +1 (475) 465-5422
• +1 (914) 690-7039

Carriers are not liable for delayed or undelivered messages.

A cookie is a small data file stored on your device. We use cookies and similar technologies (such as pixels) in two categories:

• Essential cookies, which are always active and are necessary for the site to function (for example, to load pages and submit forms); and
• Marketing and analytics cookies, including the Meta Pixel and Google Analytics, which are loaded only after you opt in through our cookie-preferences banner.

When you first visit our site, you can choose “essential only” or accept all cookies, and you can change your choice at any time through the cookie banner or your browser settings. If you decline marketing cookies, the site still works; some analytics and advertising-measurement features will simply not run. Your health information is never shared with advertising platforms.

Subject to your cookie choice above, we use the following services to understand how our site is used and to reach people who may be interested in our studies:

• Google Analytics — measures website traffic and usage patterns (such as pages viewed, time on site, and referral sources). You can opt out across all sites using Google’s browser add-on at https://tools.google.com/dlpage/gaoptout.
• Meta Pixel and Meta Lead Ads — measure the effectiveness of, and help us deliver, our clinical-research advertising on Facebook and Instagram, including tracking actions such as form submissions. You can manage ad preferences in your Meta account settings.

These providers may collect information about your activity across different websites and over time. We do not control their privacy practices; please review their own privacy policies. Again, we do not share your health information with these advertising or analytics platforms.

We keep personal information only for as long as we need it for the purposes described in this policy, or for as long as required by applicable laws, regulations, and our agreements with study sponsors. In general:

• Prescreening and contact information is retained while you remain a potential candidate for current or future studies, and for a reasonable period thereafter to meet our recordkeeping and regulatory obligations, unless you ask us to delete it sooner.
• Records created when you enroll in a study are retained for the period required by the study protocol, the sponsor, and applicable regulations (including the recordkeeping requirements under FDA regulations and ICH-GCP guidelines).
• Website analytics data is retained in accordance with our analytics providers’ standard retention settings.
• Email and text-message communication records are retained for as long as needed for compliance and quality-assurance purposes.

When we no longer need your information, we securely delete or de-identify it.

To prevent unauthorized access or disclosure and to maintain data accuracy, ALSA has put in place reasonable administrative, technical, and physical safeguards to protect the information we collect. These include encryption of data in transit (TLS/SSL) and at rest, access controls and role-based permissions, hosting on infrastructure (Google Cloud Platform) that maintains industry-standard certifications, ongoing monitoring, and staff training on data handling and privacy.

No method of transmission over the internet or method of electronic storage is completely secure, however, and we cannot guarantee absolute security.

You have the right to:

• Access — request a copy of the personal information we hold about you;
• Correct — ask us to correct inaccurate or incomplete information;
• Delete — ask us to delete your personal information, subject to legal and regulatory exceptions (for example, records we are required to retain for enrolled study participants);
• Opt out of marketing email — use the unsubscribe link in any marketing email or contact us;
• Opt out of text messages — reply STOP to any message; and
• Opt out of advertising cookies — decline marketing cookies in our cookie banner or use the opt-out tools described above.

To exercise any of these rights, contact us using the information at the end of this policy. We will respond within the time required by applicable law (generally within 30–45 days). If you no longer wish to be contacted about future studies by any method, let us know and we will honor your request.

Depending on where you live, you may have additional rights under state privacy laws — for example, the California Consumer Privacy Act, as amended (CCPA/CPRA), and the Connecticut Data Privacy Act (CTDPA). These may include the right to know about and access the personal information we collect, the right to request correction or deletion, the right to opt out of the “sale” or “sharing” of personal information or of targeted advertising, and the right not to be discriminated against for exercising your rights. We do not sell personal information.

Certain information — including information collected as part of clinical research that is subject to the FDA’s regulations, the federal Common Rule, or ICH-GCP, and information that is governed by HIPAA — may be exempt from some of these state-law rights. To make a request, contact us using the information below; we may need to verify your identity before responding.

Our website is intended for adults and is not directed to children. We do not knowingly collect personal information online from children under 13 (or, where applicable, under 16) through this website. When a study enrolls minors, their information is collected in person through the study’s informed-consent and parental-permission/assent process — not through this website. If you believe a child has provided us information through the site, please contact us and we will delete it.

Some browsers offer a “Do Not Track” (DNT) setting. Because there is no common industry standard for how to respond to DNT signals, our website does not currently respond to them. You can still control tracking through our cookie banner and the opt-out tools described in this policy.

Our website may contain links to third-party websites, including those of study sponsors, partners, and social-media platforms. We are not responsible for the privacy practices or content of those sites. We encourage you to review the privacy policy of any third-party site you visit.

We may update this policy from time to time to reflect changes in our practices, technology, or legal requirements. When we make material changes, we will update the “Effective Date” at the top and post the revised policy on www.alsaresearch.com. Your continued use of our website after we post changes means you accept the updated policy.

If you have questions about this policy or your data, or if you would like to exercise any of the rights described above, contact us at hello@alsaresearch.com or through our Contact page. You can also reach any of our clinics:

• 425 5th Avenue, 6th Floor, Unit 602, New York, NY 10016 — (646) 395-8175
• 4641 Main Street, Suite 3, Bridgeport, CT 06606 — (203) 374-9816
• 47 Oak Street, 1st Floor, Stamford, CT 06905 — (203) 325-8529